1000 Voices Report

Shine's study of over 1000 experiences of living and ageing with spina bifida in England, Wales, and Northern Ireland. This detailed report includes recommendations for professionals.

Little is currently known about how spina bifida affects the ageing process, and with so many of our members aged 40 or over, we think it's important to get answers to some of those questions. To do that, we surveyed our adult members with spina bifida to find out how their condition affects their health and lifestyle, and how this is changing with their passing years.

Of Shine’s 3,427 members with spina bifida aged 25 or over, an impressive 1082 completed the survey, (online or the paper version posted out in April), despite the questionnaire being very long (and pretty nosy in places!).

Download the report to read our findings.