Information

Find out about the conditions we support, and how we can help you with managing your health.

Other conditions we support

In addition to those listed above, we also support a number of related conditions, such as Chiari II, Tethered Cord, and others commonly experienced alongside these conditions. Click below to find out more.

Managing your health

Our specialist team can help you with anything you might need to keep your health on track. Browse the information below, or contact us if you have specific questions and would like to speak to someone.

For further information about how we might support you, have a look at our support pages.

  • Bladder & Bowel

    Get tailored, expert advice on good continence care, from infancy through adulthood.

    Read more 
  • Mobility

    Advice on options for mobility, aids, and looking after your joint and bone health.

    Read more 
  • Pain management

    Pain can be useful for our health, but the causes and management can differ from person to person.

    Read more 
  • Shunt information

    A shunt is the most commonly used way of controlling the high pressure inside the head caused by hydrocephalus.

    Read more 
  • Physical health

    Taking care of your physical self is tremendously important. Follow our advice for taking care of yourself.

    Read more 
  • Mental health and wellbeing

    Get advice on managing your mental health and wellbeing.

    Read more 
  • Fatigue and Sleep

    Make sure you're getting the rest you need, with our helpful advice.

    Read more 
  • Self advocacy

    Check our advice on getting the best out of your medical appointments and meetings.

    Read more 

For further information about how we might support you, have a look at our support pages.