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  • Home
  • Information
    • About the conditions
      • Spina bifida
      • Hydrocephalus
      • Normal Pressure Hydrocephalus
      • Idiopathic Intracranial Hypertension
      • Encephalocele
      • Anencephaly
      • Other conditions we support
    • Health information
      • Bladder and bowel
      • Mobility
      • Pain management
      • Shunt information
      • Physical health
      • Mental health and wellbeing
      • Fatigue and sleep
      • Self advocacy
  • Support
    • I'm looking for support for...
      • Adults
      • Children
      • Young people
      • Pregnancy
      • Parents and Carers
      • Professionals
    • I would like advice about...
      • Education
      • Finances & Benefits
      • Employment
      • Lifestyle
      • Shine's Legal Service
      • Shine Health Direct
  • Events
  • Get involved
    • Get involved
    • Remember a loved one
    • Get Active
    • Inspire me!
    • Leave a legacy
    • Fundraise at work
    • Fundraise at school
    • Involve your community
  • Professionals
  • News
  • About us
    • Our Team
    • Our Impact
    • Our Campaigns
    • Information for funders
    • Working for Shine
    • Contact us
  • Shop
    • All Products
    • Resources
    • Shine merchandise
    • Christmas Cards
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    • Made by our members
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Useful Clinical Guidelines

Here we have brought together all the clinical guidelines you need on the subjects which matter to and directly affect people living with spina bifida, hydrocephalus, and related conditions.

Nice Guidelines

  • NICE: Open prenatal repair for open neural tube defects in the fetus
  • NICE: Fetoscopic prenatal repair for open neural tube defects in the fetus 
  • NICE: Pressure ulcers: prevention and management 
  • NICE: Urinary incontinence in neurological disease: assessment and management 
  • NICE: Faecal incontinence in adults: management
  • NICE: Maternal and child nutrition
  • NICE: Lumbar infusion test for the investigation of normal pressure hydrocephalus
  • NICE: Drainage, irrigation and fibrinolytic therapy (DRIFT) for post-haemorrhagic hydrocephalus in preterm infants
  • NICE: Lumbar subcutaneous shunt
  • NICE: Neurological conditions
  • NICE: Suspected neurological conditions: recognition and referral
  • NICE: Neuropathic pain in adults: pharmacological management in non-specialist settings 
  • NICE: Lumbar infusion test for the investigation of normal pressure hydrocephalus 

Other useful guidance:

  • Government guide to inclusive language
  • Consensus Guidelines on the Communication of Unexpected News via Ultrasound 
  • SBNS: Antibiotic shunt guidelines

 

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