Become a Shine member

Join our wonderful Shine community! Shine membership is completely free and open to anyone living in England, Wales, and Northern Ireland, who is affected by Spina Bifida, Hydrocephalus, Normal Pressure Hydrocephalus, Idiopathic Intracranial Hypertension, Encephalocele, Anencephaly, or related conditions.

If you're expecting a baby and have just had a diagnosis, or you've lost someone, and would like some advice, give us a call on 01733 555988 and we'll put in touch with the most appropriate team.

Our teamSupport we offer

  • Child (0-17)

    For parents/carers of a child or young person aged under 18.

    Join now 

  • Adult (18+)

    For adults aged 18 or over.

    Join now 

  • Expecting a baby

    For those who are expecting a baby and would like some advice.

    Join now 

  • Parent/Carer

    For parents/carers of adults over 18 years (if you want to discuss the needs of the person you care for we need their consent to be able to do this).

    Join now 

  • Bereaved Parent/Carer

    For those who have lost someone, either recently or in the past.

    Join now 

  • Friend

    For those who don't have the conditions and aren't carers, but want to know more about our work.

    Join now 

Not sure which membership is for you? Contact our team for assistance.

Contact us

Professional membership

Become a Professional Member and collaborate with us to help improve the lives of people living with spina bifida, hydrocephalus, and related conditions. We work with health professionals, education professionals, and researchers working to improve the lives of those affected by these complex conditions.

Join today

As a Shine member, you have access to advice, specialist support and practical help from our experienced staff teams who have a deep understanding of the conditions we represent. Read more about how we can support you here.

As well as our advice and support services, we also offer:

  • Access to a network of friends and peers amongst our 15,000+ members
  • Invitations to virtual, regional and national events and support groups
  • Invitations to join virtual peer support networks and specialist closed zoom sessions
  • Option to join Shine Health Direct, our Home Delivery Service
  • A free copy of our twice yearly magazine ‘Together’

Register online now and once your form has been processed a Support and Development Worker will give you a call to introduce themselves to you.