Stories and Impact

Navigating a spina bifida pregnancy - Gemma's story

Navigating a spina bifida pregnancy - Gemma's s...

Shine were mentioned to me by hospital staff just after I was given the news that my baby had spina bifida and hydrocephalus at 22 weeks pregnant. 

Navigating a spina bifida pregnancy - Gemma's s...

Shine were mentioned to me by hospital staff just after I was given the news that my baby had spina bifida and hydrocephalus at 22 weeks pregnant. 

Someone to turn to - Stephanie's story

Someone to turn to - Stephanie's story

My first contact with Shine was when I was 16 weeks pregnant. I found out that Robyn was going to have spina bifida, hydrocephalus and congenital kyphosis. 

Someone to turn to - Stephanie's story

My first contact with Shine was when I was 16 weeks pregnant. I found out that Robyn was going to have spina bifida, hydrocephalus and congenital kyphosis. 

Heather's story

Heather's story

Heather's life changed forever when she was 51 years old. Read about how she came to terms with a hydrocephalus and finding a community to help and support her.

Heather's story

Heather's life changed forever when she was 51 years old. Read about how she came to terms with a hydrocephalus and finding a community to help and support her.

Spread a little 'shine' this festive season - Charlie

Spread a little 'shine' this festive season - C...

Meet the wonderful McCrum family from Northern Ireland, whose journey has been marked by resilience and love. In 2021, they welcomed their son, Charlie, who was born with spina bifida...

Spread a little 'shine' this festive season - C...

Meet the wonderful McCrum family from Northern Ireland, whose journey has been marked by resilience and love. In 2021, they welcomed their son, Charlie, who was born with spina bifida...

Spread a little 'shine' this festive season - Marion

Spread a little 'shine' this festive season - M...

Meet Marion who has received support from Shine from childhood to her adult life. “With support from my various Shine Support and Development Workers, and other Shine staff, I have...

Spread a little 'shine' this festive season - M...

Meet Marion who has received support from Shine from childhood to her adult life. “With support from my various Shine Support and Development Workers, and other Shine staff, I have...

Spread a little 'shine' this festive season - Owain

Spread a little 'shine' this festive season - O...

Meet Owain, a remarkable 17-year-old Shine member from Wales. Despite the many challenges that living with spina bifida and hydrocephalus bring, Owain’s positivity and determination shine through in everything he...

Spread a little 'shine' this festive season - O...

Meet Owain, a remarkable 17-year-old Shine member from Wales. Despite the many challenges that living with spina bifida and hydrocephalus bring, Owain’s positivity and determination shine through in everything he...