It's here - Spina Bifida Awareness Week 2025
Spina Bifida Awareness Week is here - 20th - 26th October 2025!
This October, we’re coming together to shine a light on what it really means to live with spina bifida, and we’d love you to be part of it.
As always, there will be plenty of opportunities to join in and get involved in celebrating our spina bifida community throughout the week.
Share your experiences
Our goal is to show what living with spina bifida is like - what it is really like - at all ages and stages of life. And who better to show it than you! We'd love to share some of your thoughts and experiences, if you would lend them to us.
Here are a few prompts to get you started:
- What would you tell a friend about spina bifida?
- What do you think people should know about the condition?
- What would you tell your younger self, knowing what you know now?
There's a form (click the button below) if you have something you would like to share. It can be an anonymous quote or a full story.
Remember, only share what you're comfortable with us sharing publicly on Shine’s social media channels, and make clear any details you want us to keep private.
Come along to one of our events
During the week, we have information sessions and social events for you to come along to, both virtual and face-to-face. We'll email and post on our social media with updates, and keep checking our website to sign up to events.
Get involved
Of course, awareness is just one part of the week, Spina Bifida Awareness Week is also a great time to come together to fundraise. Not only does fundraising help Shine continue to support the spina bifida community, it also amplifies our voices when raising awareness.
Our lovely team at Shine really do put the 'fun' in fundraising, and they have lots of inspiration if you're keen to get involved - watch out for their email next week! (Make sure you're on the list - click here).
However you'd like to take part, we're looking forward to celebrating with you this Spina Bifida Awareness Week.
Together, we can make this Spina Bifida Awareness Week the best yet.
If you have any questions, please contact us on 01733 555988 or firstcontact@shinecharity.org.uk.