{"title":"Hydrocephalus resources","description":"\u003cp\u003eFind our information leaflets, guides and resources for hydrocephalus here. If you have questions or need support, do get in touch.\u003c\/p\u003e","products":[{"product_id":"your-child-and-hydrocephalus-digital","title":"Your Child and Hydrocephalus (Digital)","description":"\u003cp class=\"intro\"\u003e\u003cem\u003eGet a digital copy of our popular resource\u003c\/em\u003e. Written by our expert health team, \u003cstrong\u003eYour Child and Hydrocephalus\u003c\/strong\u003e contains over 80 pages of information covering every aspect of your child's development from birth to 12 years old.\u003c\/p\u003e\n\u003cp\u003eWhether they're starting to wean, taking their first steps, or making the transition from primary to secondary school, this guide will teach you what to expect, what to look out for, and what action to take. \u003c\/p\u003e\n\u003cp\u003eIt's a great resource for parents and professionals.\u003c\/p\u003e\n\u003cp\u003eIf you would like a hard copy, \u003ca href=\"https:\/\/shinecharity.org.uk\/products\/your-child-and-hydrocephalus\"\u003ethese are available to purchase here\u003c\/a\u003e.\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":56866491466072,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/Your_Child_and_Hydrocephalus_cover_-_digital.png?v=1773069678"},{"product_id":"shunt-alert-card-hydrocephalus-for-children","title":"Shunt Alert Card - Hydrocephalus - for children","description":"\u003cp\u003e\u003cspan\u003eDesigned specifically for \u003cstrong\u003echildren who have Hydrocephalus\u003c\/strong\u003e.\u003c\/span\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cspan\u003eThese cards hold information about you, your condition, and your shunt. It also holds contact information for your next of kin and your specialist team's contact details to be used in an emergency.\u003c\/span\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cspan\u003eFill in the card with your shunt information, or ask the neurosurgical team to fill it in for you when you have your shunt operation\u003cem\u003e, \u003c\/em\u003eand carry it with you when you leave the house in case of emergencies. This is particularly important if your nearest hospital is not your neurosurgery hospital as they may not know about your shunt.\u003c\/span\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cspan\u003eFor children, these can be especially useful to have at day care or school.\u003c\/span\u003e\u003c\/p\u003e\n\u003cul\u003e\n\u003cli\u003e\u003cspan\u003eSize is roughly 8x5cm (about the same as a standard credit card)\u003c\/span\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cspan\u003ePrinted on foldable cardboard\u003c\/span\u003e\u003c\/li\u003e\n\u003cli\u003eEditable - you can write on it to add your personal details\u003cspan\u003e\u003c\/span\u003e\n\u003c\/li\u003e\n\u003cli\u003eComes in pack of 3\u003c\/li\u003e\n\u003c\/ul\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":57679507292504,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/ShuntAlertCard-Hydro-Children.png?v=1783694772"},{"product_id":"shunt-alert-card-hydrocephalus-for-adults","title":"Shunt Alert Card - Hydrocephalus - for adults","description":"\u003cp\u003e\u003cspan\u003eDesigned specifically for \u003cstrong\u003eadults who have Hydrocephalus\u003c\/strong\u003e.\u003c\/span\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cspan\u003eThese cards hold information about you, your condition, and your shunt. It also holds contact information for your next of kin and your specialist team's contact details to be used in an emergency.\u003c\/span\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cspan\u003eFill in the card with your shunt information, or ask the neurosurgical team to fill it in for you when you have your shunt operation\u003cem\u003e, \u003c\/em\u003eand carry it with you when you leave the house in case of emergencies. This is particularly important if your nearest hospital is not your neurosurgery hospital as they may not know about your shunt.\u003c\/span\u003e\u003c\/p\u003e\n\u003cul\u003e\n\u003cli\u003e\u003cspan\u003eSize is roughly 8x5cm (about the same as a standard credit card)\u003c\/span\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cspan\u003ePrinted on foldable cardboard\u003c\/span\u003e\u003c\/li\u003e\n\u003cli\u003eEditable - you can write on it to add your personal details\u003cspan\u003e\u003c\/span\u003e\n\u003c\/li\u003e\n\u003cli\u003eComes in pack of 3\u003c\/li\u003e\n\u003c\/ul\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":57679526986072,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/ShuntAlertCard-Hydro-Adults.png?v=1783694777"},{"product_id":"what-is-hydrocephalus-digital-version","title":"What is Hydrocephalus (digital version)","description":"\u003cp\u003e\u003cstrong\u003eShine's guide to hydrocephalus\u003c\/strong\u003e, describing the condition, the causes, the different types, effects, how it's treated, as well as helpful information about shunts, and how Shine can support you.\u003c\/p\u003e\n\u003cp\u003eDownload now to get the digital version.\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58330436862296,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/What_is_Hydrocephalus_digital.png?v=1788033359"},{"product_id":"what-is-hydrocephalus-printed-version","title":"What is Hydrocephalus (print version)","description":"\u003cp\u003e\u003cstrong\u003eShine's guide to hydrocephalus\u003c\/strong\u003e, describing the condition, the causes, the different types, effects, how it's treated, as well as helpful information about shunts, and how Shine can support you.\u003c\/p\u003e\n\u003cp\u003eOrder now to get the printed version.\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58330461241688,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/What_is_Hydrocephalus_print.png?v=1788033359"},{"product_id":"new-parents-pack-hydrocephalus-digital-version","title":"New Parents Pack - Hydrocephalus (digital version)","description":"\u003cp\u003e\u003cstrong\u003eIf you’ve been told that the baby you’re expecting has hydrocephalus, or you have a new baby with hydrocephalus, this pack is for you.\u003c\/strong\u003e\u003c\/p\u003e\n\u003cp\u003eWe work with thousands of parents of children with hydrocephalus, and with the adults that those children eventually grow up to be. We are here to help you when you feel anxious or daunted, but also to celebrate every achievement along the way.\u003c\/p\u003e\n\u003cp\u003eThe purpose of this New Parents’ Pack is to help you to understand hydrocephalus and to offer you guidance as your child develops. Although there are wide variations in what your child may experience, we want to help you to be as prepared as possible for your new baby’s arrival and the early stages of their life.\u003c\/p\u003e\n\u003cp\u003eOnce you’ve read this information, you may still like more support from Shine. We’re always happy to answer any queries that you have at this stage and as your baby grows.\u003c\/p\u003e\n\u003cp\u003e\u003cstrong\u003eWe wish you all the best as you welcome your new baby.\u003c\/strong\u003e\u003c\/p\u003e\n\u003cp\u003eDownload our digital version now.\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58330971210072,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/New_Parents_Pack_-_Hydrocephalus_digital.png?v=1788035696"},{"product_id":"shines-specialist-services-digital-version","title":"Shine's Specialist Services (digital version)","description":"\u003cp\u003eOur Specialist Services booklet outlines how we can support you.\u003c\/p\u003e\n\u003cp\u003eShine is the UK's specialist charity supporting people living with spina bifida, hydrocephalus, normal pressure hydrocephalus (NPH), and related conditions. For over 60 years, we have been helping individuals of all ages and their families navigate the challenges these lifelong neurological conditions can bring, while empowering them to live healthy, independent and fulfilling lives.\u003c\/p\u003e\n\u003cp\u003eDownload the digital version now.\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58331121156440,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/Shine_sSpecialistServices_digital.png?v=1788037769"},{"product_id":"shines-hydrocephalus-services-print-version","title":"Shine's Hydrocephalus Services (print version)","description":"\u003cp\u003eIf you, or someone you love, \u003cspan style=\"font-size: 0.875rem;\"\u003ehas hydrocephalus, this booklet outlines how Shine can support you. We can offer practical advice and \u003c\/span\u003e\u003cspan style=\"font-size: 0.875rem;\"\u003esupport from pre-birth and throughout life for anyone living with hydrocephalus and associated conditions. We also advise and support parents, families, carers and professional health, and social care staff.\u003cbr\u003e\u003c\/span\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cspan style=\"font-size: 0.875rem;\"\u003eOrder the print version now.\u003c\/span\u003e\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58331153236312,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/Shine_sHydrocephalusServices_print.png?v=1788039179"},{"product_id":"living-well-with-hydrocephalus-technology-and-cognitive-strategies","title":"Living Well with Hydrocephalus - Technology and Cognitive Strategies","description":"\u003ch3\u003eJoin us for Living Well with Hydrocephalus; a supportive space to learn together, build practical skills for everyday life, and connect with other Shine members.\u003c\/h3\u003e\n\u003cp\u003eThis session will focus on technology and cognitive strategies. Technology can play an important role in everyday life, but knowing where to start can sometimes feel overwhelming. During this session, we'll explore practical cognitive strategies and the ways technology can support day-to-day living.\u003c\/p\u003e\n\u003cp\u003eTogether, we'll discuss how technology can help you:\u003cbr\u003e•    Manage daily activities \u003cbr\u003e•    Increase independence and confidence\u003cbr\u003e•    Support paid employment, volunteering, and other meaningful activities\u003c\/p\u003e\n\u003cp\u003eWhether you're newly diagnosed or have been living with hydrocephalus for years, this session offers an opportunity to learn practical tips, connect with others, and feel supported.\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58366729290072,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/event-brain-graphic-hydrocepehalus.png?v=1788346136"},{"product_id":"hydrocephalus-and-me-cards","title":"Hydrocephalus and Me cards","description":"\u003ch3\u003e\u003cspan\u003eOrder your free 'Hydrocephalus and Me' card today, and help those around you to understand what support they can offer you to help with the effects of your condition.\u003c\/span\u003e\u003c\/h3\u003e\n\u003cp\u003eNot sure what to include?  Check out our examples below, but remember - no two people with hydrocephalus are the same, your card is personal to you.\u003c\/p\u003e\n\u003ch4\u003eHydrocephalus means that I might:\u003c\/h4\u003e\n\u003cul\u003e\n\u003cli\u003ehave headaches \u003c\/li\u003e\n\u003cli\u003ehave blurred or double vision \u003c\/li\u003e\n\u003cli\u003ehave bladder and \/ or bowel incontinence \u003c\/li\u003e\n\u003cli\u003ehave anxiety and \/ or panic attacks \u003c\/li\u003e\n\u003cli\u003ehave depression   \u003c\/li\u003e\n\u003cli\u003ehave difficulties with walking and\/or balance\u003c\/li\u003e\n\u003cli\u003ehave difficulties with co-ordination and\/or wayfinding\u003c\/li\u003e\n\u003cli\u003ehave difficulties with memory \u003c\/li\u003e\n\u003cli\u003ehave difficulties with following conversation \/ instructions \u003c\/li\u003e\n\u003cli\u003ehave difficulties with starting tasks and \/ or completing them \u003c\/li\u003e\n\u003cli\u003ehave difficulties with learning and concentration \u003c\/li\u003e\n\u003cli\u003ehave difficulties with controlling my mood \/ behaviour \u003c\/li\u003e\n\u003cli\u003ehave difficulties with judging when I need help \u003c\/li\u003e\n\u003cli\u003ehave difficulties with taking in a lot of information all at once\u003c\/li\u003e\n\u003cli\u003ehave difficulties with adapting to change \u003c\/li\u003e\n\u003c\/ul\u003e\n\u003ch4\u003eThings you can do to help, include: \u003c\/h4\u003e\n\u003cul\u003e\n\u003cli\u003eFinding me somewhere to sit down \u003c\/li\u003e\n\u003cli\u003eGetting me a glass of water \u003c\/li\u003e\n\u003cli\u003eWriting things down that I need to remember \/ give me time to write them down or record them on my phone \u003c\/li\u003e\n\u003cli\u003eBeing patient \u003c\/li\u003e\n\u003cli\u003eSpeaking clearly, with information given in small ‘chunks’ \u003c\/li\u003e\n\u003cli\u003eGiving me some extra time to complete a task \u003c\/li\u003e\n\u003cli\u003eFinding an accessible toilet \u003c\/li\u003e\n\u003cli\u003eSending me reminders about appointments \/ tasks \u003c\/li\u003e\n\u003cli\u003eHelping me calm down if I’m anxious \u003c\/li\u003e\n\u003cli\u003eReminding me what I need to do, and when \u003c\/li\u003e\n\u003cli\u003eGiving me somewhere quiet to work\u003c\/li\u003e\n\u003c\/ul\u003e\n\u003cp\u003eFor instructions on how to use your card, check out our video below.\u003c\/p\u003e\n\u003cp\u003e\u003cspan\u003e\u003ciframe class=\"youtube-player\" type=\"text\/html\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/9Egel6Cy95A?rel=0\u0026amp;modestbranding=1\u0026amp;start=0\u0026amp;enablejsapi=1\" id=\"799604702\" title=\"How to use your Hydrocephalus and Me Card\"\u003e\u003c\/iframe\u003e\u003c\/span\u003e\u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58369828815192,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/HydroandMecards.png?v=1788367585"},{"product_id":"touchpoint-drop-in-1","title":"Touchpoint drop in","description":"\u003ch3\u003eJoin Shine’s specialist therapy team for our Touchpoint drop in sessions for the chance to ask questions, condition specific advice, as well as the chance to meet other Shine members.\u003c\/h3\u003e\n\u003cp\u003eShine’s Touchpoint service is a proactive, therapy-led sessions designed especially for our Little Stars aged 0 to 2 years.\u003c\/p\u003e\n\u003cp\u003eLed by Shine’s Specialist Occupational Therapist and Specialist Physiotherapist team. Our Touchpoint service offer experts guidance and reassurance at key stages of your child’s development.\u003c\/p\u003e\n\u003cp\u003eOur Touchpoint sessions are designed to complement NHS therapy services and are offered at 3, 7, 12 and 24 months.\u003c\/p\u003e\n\u003cp\u003eThese supportive drop-in zoom sessions help families understand their child’s development while offering a safe space to ask questions and discuss any concerns along the way.\u003c\/p\u003e\n\u003cp\u003eSessions cover a range of topics, including:\u003c\/p\u003e\n\u003cul\u003e\n\u003cli\u003eSensory processing\u003c\/li\u003e\n\u003cli\u003eSleep\u003c\/li\u003e\n\u003cli\u003eFeeding\u003c\/li\u003e\n\u003cli\u003eTummy time\u003c\/li\u003e\n\u003cli\u003eRolling\u003c\/li\u003e\n\u003cli\u003eMessy play\u003c\/li\u003e\n\u003cli\u003eEarly mobility and independence\u003c\/li\u003e\n\u003cli\u003eHow to access specialist equipment, including wheelchairs, mobility aids and seating support, where appropriate.\u003c\/li\u003e\n\u003c\/ul\u003e\n\u003cp\u003eDuring the session we share practical ideas that you can use every day to support your child’s development.\u003c\/p\u003e\n\u003cp\u003eThese conversations are aimed at helping you and your child to build confidence and independence in everyday life.\u003c\/p\u003e\n\u003cp\u003eTouchpoint drop in sessions will give you access to Shine’s specialist OT and Physio, alongside the opportunity to connect with other Shine families for emotional and practical support through the unique challenges Spina Bifida and Hydrocephalus can bring.\u003c\/p\u003e\n\u003cp\u003eYou can find our Touchpoint video resources and other useful links \u003ca href=\"https:\/\/www.shinecharity.org.uk\/little-stars\/touchpoint\"\u003ehere\u003c\/a\u003e\u003c\/p\u003e\n\u003cp\u003eWe look forward to meeting you! \u003c\/p\u003e","brand":"Shine Charity","offers":[{"title":"Default Title","offer_id":58374952911192,"sku":null,"price":0.0,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/4625\/7496\/files\/events-touchpoint-drop-in.jpg?v=1788345093"}],"url":"https:\/\/shinecharity.org.uk\/collections\/hydrocephalus.oembed","provider":"Shine Charity ","version":"1.0","type":"link"}